Dear SNOMED CT and Orphanet users,

Thank you for your interest in participating in the Alpha test/review of the maps between SNOMED CT and Orphanet. We realise that times are difficult during the COVID-19 pandemic and hope you and your loved ones are keeping well.

The April 2020 Alpha release of the SNOMED CT Orphanet Simple Map package is now available from the MLDS distribution site.

The ALPHA release package is distributed for evaluation purposes only. It must not be used in production clinical systems or in clinical settings, or distributed to Affiliate Licensees or any third parties at this time.  

This Alpha release provides organizations an opportunity to perform a thorough evaluation of the SNOMED CT Orphanet Simple Map package, and to provide feedback to SNOMED International.  

This release is dependent upon, and should therefore be evaluated in the context of the January 2020 SNOMED CT International Edition.

All files distributed for the April 2020 Alpha release are available from the “April 2020 ALPHA Release v0.1” version in the “Offline & Alpha versions” section of the “SNOMED CT Orphanet Simple Map package” project, which can be found on the “SNOMED Releases” page in MLDS, accessed here (please ensure that you login to MLDS first): 

The SNOMED CT Alpha release is distributed in a zipped archive file in the official RF2 format as follows (the Release Notes are located separately in the same repository as normal):


The SNOMED CT Alpha Release Notes can also be accessed online:

If you do not have access to MLDS, please request the Alpha release package by contacting the Release Management Team by email (, with the subject "Release Management Team - SNOMED CT Orphanet Simple Map package April 2020 ALPHA release access request".

SNOMED International is actively seeking feedback during the Alpha review period on the quality of the map, both from a content and technical aspect, as well as feedback on specific use cases.  

Feedback should be sent to as soon as possible, but no later than 30th November 2020.

When providing feedback, please include as much detail as possible, incorporating references to, or samples of, specific instances of the issue being reported.  The absence of sufficient information to allow SNOMED International to confirm the reported issue may result in no action being taken prior to the Production release.  Feedback on content related issues will be assessed and prioritized by SNOMED International, and a decision will be made as to whether to address any reported content issues for the Production release or as part of a future release.  

If you have any questions about the April 2020 Alpha release, or have difficulties downloading this file, please contact SNOMED International at with “April 2020 SNOMED CT Orphanet Simple Map package Alpha release question” in the subject line. 

Kind regards,

Andrew Atkinson  |  Release Manager

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