Register -
Making the most of SNOMED CT in clinical registries
A clinical registry is a database that gathers together patient information focusing on a specific diagnosis or clinical definition. The database is then used to help to improve and monitor the quality of patient care. The structure of computerised databases supports the sharing of data between registries. SNOMED CT supports both the data sharing interoperability requirement, but in addition also provides an analytical framework to provide greater insight into the data and linkages between data items. The session will explore real-world experiences of using SNOMED CT to support these purposes, and hopes to generate a broader discussion on the uptake of SNOMED CT to support this important use case.
| Presenter | Picture | Description | Presentation |
|---|---|---|---|
| Franz Schaefer - European Organisation for rare Diseases (EURODIS) |
| EU Rare Disease registry | |
| Ronald Cornett - |
| European Renal Association, University of Amsterdam |
| The ERA Registry on dialysis and transplant patients: the use of SNOMED CT in primary real disease and causes of death codes |
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| Sylvia |
| Laar - Ministry of Health, Welfare and Sport, Netherlands |
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| Netherlands national registries |
Kasey Diebold, MS
Informatics Health Scientist
Sandy Jones Public Health Advisor (Informatics). Centre for Disease Control (CDC) |
| Transforming Cancer Registry Surveillance through Interoperability |
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